autism – Page 2 – St GEORGIA & Boo

We are in a moment of transition. She, moving from the securities of school and routine into a world of unfamiliar patterns with no real defined path to take and i, into that of being a parent of a young adult who i adore and are sincerely troubled by. My troubles come not with so much her misunderstandings of me, my ways, my thinking, but more so of my own lack of understanding in the ways a mother should know her daughter and the way she moves. It has been a tireless rollercoaster of emotions, I am missing the mark more times than not, lately. Too many tears are being shed, too many battles are playing out. There are too many times when i am forgetting that our minds work differently, that she sees and defines her world in her own way, in her own time, my impatience is relentless. Why am i failing to remember her truth when in the midst of the drama and chaos of the moment? And it is only in the quiet moments after all has been said and done, when the fire has reluctantly settled and we are exhausted from trying so hard, to understand each other, to go away not really understanding anything at all; that i find myself asking how much of this really matters anyway? does she really need to know that the world can be cruel and unforgiving and intolerant to differences? I am overwhelmed by how much learning i still have to do and fearful that the only way we are learning our way forward right now is though these unforgiving moments.

I know ill do better, as i know better. I will compassionately forgive myself of my misgivings of her. We will always start again tomorrow, neither of us holding our defeats against the other at the end of the day and life will go on.

honouring a year past..

This year has been a hard one for our family, big changes came with big challenges, much of which we are still unfolding. My girls sometimes worry that we are unique in the current unrest of our home, that the waves of emotions and truthful uncertainties are not something that is felt within the homes of their friends families. The truth is, it is more likely closer to what is real than the idea of ‘happily ever after’ is in many ways. We are forever unfolding and growing into ourselves and if we get too caught up in things that don’t matter for long enough, we can lose sight of what truly does, even with the ones we love the most. It is important for them not to be too sheltered from life’s pains. If we protect and hide what is real, what is raw and true, we teach them to only know life as an all encompassing wonderful. And life is wonderful but it can also be equally devastating and no one is immune to feeling some sort of devastation at some time in their lives. We need our children to be aware of this, we need to them to grow with resilience, so when life imposes hard challenges upon them, they will know that it is alright to hit the ground. It is alright to feel hard pain. It isn’t a sign of a weakness or a betrayal of a story that they have been living, there is no shame, no need to hide or mask what is real for them in that moment. They need to understand that life moves around and around, and the hardest of moments will pass, we will circle up again. Staying true takes bravery. Staying true, doesn’t always mean that there is an absence of love. Love can be very present and it’s a difficult challenge to go on loving another without an idea of what the story is really meant to look like. Life and love are messy, children do complicate relationships, it takes a deep kind of honesty to be able to understand and often admit such inclinations. I would rather my children know that they wont be saved from never feeling pain in their relationships, that having children will challenge them in ways that they could never imagine. Parenting, is tricky. Autism is a blessing and a heartache. There is subtleties, that only you as a parent can recognise, the struggles and misunderstandings, confusions and frustrations. It’s almost impossible to completely understand, and as a parent you carry a certain kind of worry that is unique only to them. These honest challenges have put a strain on our family, and we are all still trying to find our grounding. I am hopeful that we are on our way up again. I have let go of any ideas of what I thought we were meant to be and are allowing life to honour us with what we are instead. I have surrendered, and relaxed into the truth and I know happiness will flow through our doors once again, sometime soon. This past year we have shared many, many tears and have experienced more than our fair share of temper tantrums from toddlers, teenagers and an overloaded mother. But as a family we have triumphed life with our spirits, love and acceptance of what is. In all our uncertainties that we have been presented with, we are settled in the knowing that we are a strong tribe and we will be alright, no matter what life bestows upon us next.

teaching him empathy, learning about space.

It is hard to explain and accept that you can’t just assume that he will always embrace your affections. That after hours or days or even weeks of not seeing his delightful smile, that he would openly allow you to take him into your arms. So that you may show him how much you love him, how much he means to you. This is not how it works for him. He must decided when. He must decide how it will play out. This is alright if you have no needs to fill, if you are perfectly happy within the space he creates for a while. It is hard to explain that this is not personal. That even a mother, a father, a grandparent or sibling can be denied at anytime. It is easy to assume that just because he wont allow you to take him in your arms, that he is not happy to see you. It is easy to mistake this for not caring. It is easy to feel hurt, even betrayed by his rejections. He is only three, and unaware of it all. I see, when people come to visit, how excited he is, how he hides this behind peculiar noises and animal masks. I see, that he is wanting to engage you, how happy he is that you are here, that you have come to see him. He may not show you this in the way you are expecting. He may show you this by watching you for a while from a distance, he may talk to you from behind his hands or he’ll find something for you to play with beside him. When he’s ready, when he feels that there is no longer any pressure, he will show you love. The love that you were seeking from the very beginning. I have found that it is always better to ask first. This is an unusual mannerism to try to adopt, to try to get others to follow suit too, that we should ask the other if a cuddle is alright or a kiss to say I love you, especially if that other is only a child. We are so accustomed to greeting each other this way, it comes naturally for most, and usually expected. It’s a pattern we have had to relearn for this little one. In the process it is teaching us about boundaries and personal space even with the ones we love. We are having to teach him about feelings and empathy and faces and body language. Why we sometimes cry and that laughing means you are happy. We are learning too, every step of the way, to take more notice of each other, to read the signs, to assume nothing and most of all to be patient. I don’t know if this will ever come naturally to him, if he will always find it at times uncomfortable and unnecessary. I’m not sure if we can change this or if we even should be trying. He is who he is, it won’t always fit with the world, it won’t always be what we want it to be, but if we can teach him to love and embrace himself in all his uniqueness and not be bothered so much about the things that really don’t matter, then I believe, that will be more than enough.

thoughts over lunch

The simplicity of

feeding the chickens

who laid the eggs

for me to cook

to feed

to the children.

can all of life possibly be this simple?

I am so thankful that my children are living just a little of this simplicity, in between ipads and youtube train clips. I’m thankful that my three-year old with autism can tell the difference between a carrot and a potato and that I often find play dough in muffin trays in my oven because he has been making cookies. Both of our little ones enjoy cups of tea in the morning, not because they are thirsty, more so because they already in their young minds understand the sacredness of that first morning cup, where sleepy eyes and heads are not quite awake enough yet for the beginning, for play. They will learn where their food comes from and that they don’t really need much to keep their bellies content.. maybe just a few chickens roaming in the yard.

butter cookies and words

cooking with toddlers is always going to be anything but methodical. Before pursuit it is absolutely necessary to let go of any concept that the process is going to run smoothly and without fuss or mess for that matter. It almost needs to be seen as organised chaos with the idea that anything could happen and that there may not even be any consumable produce from the event. What is important to remember is, that all of the learning lies within the experience. For us it’s all about the sensory play, our boo thrives on the touch and taste of soft dough and at the moment any activity that encourages his participation, cooperation and patients is welcomed.

BUTTER COOKIES

ingredients:125g softened butter,100g caster sugar,1 free-range egg,200 g plain flour,1tsp vanilla extract,1/4tsp baking powder,sprinkles,extra flour for dusting

method: Beat butter and sugar in a kitchen mixer until light and fluffy. Add the egg and vanilla extract and beat well, then add the flour and baking powder and mix until a ball of dough forms. At this stage is good to roll dough into a ball and wrap in cling film and put into the fridge to chill for an hour, however this step is completely unacceptable to my toddlers so we always skip it and go straight to here, on a lightly floured surface roll out the dough to 1/2cm thick with cookie cutters cut out shapes and gently press into the sprinkles and lay onto baking tray lined with baking paper. If dough is extra soft from skipping the chilling step, you can, with lightly floured hands roll teaspoons of the mixture and then press them into the sprinkles. Bake for 10 to 12 minutes at 180°C or until the edges are slightly browned.

recipe adapted from JamieOliver.com Lemon Butter Biscuits

black and white pictures

pictures captured on the beach in Cows, Phillip Island, with myself,Georgia, Boo and the rain

There may be more to it.

Most of the time to look at him you would never know. His quirky traits are playful parts of his personality. He is only three. He is boisterous, fast and loud, and can woo you with his infectious smile. When he smiles, when he sees you, you immediately feel better about everything. This same three year old can in an instant bring you to an immense feeling of hopelessness. Meltdowns would seem to the untrained eye, a temper tantrum, a child clearly out of control, manipulating parents with learnt loud, aggressive and unacceptable behaviour; clearly a spoilt child in need of some serious parental discipline. It would appear to the observer that the parent is too complacent, too submissive in their response to this confronting public display. It doesn’t seem to matter if on looker’s refrain from voicing their discontent, standing by with their well behaved children. In that moment they are the better parent. The judgment is always felt. Rarely are sympathetic, compassionate smiles of kinship offered. Even without the underpinning of autism, as parents we have all been there. When was it that we began to judge each other so harshly? When did we become unsympathetic towards each other in these moments? Where is the heartfelt understanding amongst mothers that says ‘it’s alright, I’ve been there too, actually it was only just this morning.’ I have found these moments to be the hardest on older siblings. They are all too aware of judging on lookers. They have mixed emotions, they know what is needed in this moment for their loved one. They have seen it many times, they are familiar and unconcerned when it is in the comfort of their home. Five minutes may as well be five hours. They feel his torment and carry the guilt of their own torment of silently wanting to step away; I understand. Explanation of peoples reactions is always necessary after any public outburst. I remind them every time that it doesn’t matter what people are thinking about us, or about our actions or lack thereof. All that ever matters is how we respond towards our Boo. For we understand and know him better than anyone else. I can only hope that the lesson my children are learning here might be that when they go about their lives and find themselves witnesses to yet another story, that judgment won’t be their first impression and that they will remember to feel compassion. Maybe even offer a reassuring smile to show that they too know this story only too well and understand.

some place, he goes

I often wonder where he goes. The moments when stillness overcomes his small body and a vacant look sets upon him deep within the souls of his eyes. He lays awake almost unmoving, yet in such a place you know in this moment, that you are not welcome to visit. You can’t go there with him, he can’t tell you where he’s been. I wonder what his thoughts are. What is this three-year old contemplating so deeply on. Or is he even contemplating at all. Maybe he is in that place, the place we have all at times in our lives so desperately wanted to escape to. The place of nothingness. Where needing and wanting simply don’t exist. There is no feeling, no emotion, no thought. Just being. Being still in a world that is full of ever moving motion. I wonder if i’ll ever know where he goes. I wonder if there will be a time when he will know, or if it will remain a mysterious part of his life, for his life. There is a part of me that hopes he’ll hold onto this special place, a hope that he won’t grow out of or forget how to get there. I’m not bothered by when or how often he disappears, I’m reassured that where ever he is going there is peace and it is offering him a calmness that can come from no other place than there. This place, is a sanctuary of rest that seems to belong to only him, it’s a blessing, a moment of clarity, it’s probably more real than anything else in this wonderful dream like state we are all living in.