There may be more to it.

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Most of the time to look at him you would never know. His quirky traits are playful parts of his personality. He is only three. He is boisterous, fast and loud, and can woo you with his infectious smile. When he smiles, when he sees you, you immediately feel better about everything. This same three year old can in an instant bring you to an immense feeling of hopelessness.  Meltdowns would  seem to the untrained eye, a temper tantrum, a child clearly out of control, manipulating parents with learnt loud, aggressive and unacceptable behaviour; clearly a spoilt child in need of some serious parental discipline. It would appear to the observer that the parent is too complacent, too submissive in their response to this confronting public display. It doesn’t seem to matter if on looker’s refrain from voicing their  discontent, standing by with their well behaved children. In that moment they are the better parent. The judgment is always felt. Rarely are sympathetic, compassionate smiles of kinship offered. Even without the underpinning of autism, as parents we have all been there. When was it that we began to judge each other so harshly? When did we become unsympathetic towards each other in these moments? Where is the heartfelt understanding amongst mothers that says ‘it’s alright, I’ve been there too, actually it was only just this morning.’ I have found these moments to be the hardest on older siblings. They are all too aware of judging on lookers. They have mixed emotions, they know what is needed in this moment for their loved one. They have seen it many times, they are familiar and unconcerned when it is in the comfort of their home. Five minutes may as well be five hours. They feel his torment and carry the guilt of their own torment of silently wanting to step away; I understand. Explanation of peoples reactions is always necessary after any public outburst. I remind them every time that it doesn’t matter what people are thinking about us, or about our actions or lack thereof. All that ever matters is how we respond towards our Boo. For we understand and know him better than anyone else. I can only hope that the lesson my children are learning here might be that when they go about their lives and find themselves witnesses to yet another story, that judgment won’t be their first impression and that they will remember to feel compassion. Maybe even offer a reassuring smile to show that they too know this story only too well and understand.

 

some place, he goes

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I often wonder where he goes. The moments when stillness overcomes his small body and a vacant  look sets upon him deep within the souls of his eyes. He lays awake almost unmoving, yet in such a place you know in this moment, that you are not welcome to visit. You can’t go there with him, he can’t tell you where he’s been. I wonder what his thoughts are. What is this three-year old contemplating so deeply on. Or is he even contemplating at all. Maybe he is in that place, the place we have all at times in our lives so desperately wanted to escape to. The place of nothingness. Where needing and wanting simply don’t exist. There is no feeling, no emotion, no thought. Just being. Being still in a world that is full of ever moving motion. I wonder if i’ll ever know where he goes. I wonder if there will be a time when he will know, or if it will remain a mysterious part of his life, for his life. There is a part of me that hopes he’ll hold onto this special place, a hope that he won’t grow out of or forget how to get there. I’m not bothered by when or how often he disappears, I’m reassured that where ever he is going there is peace and it is offering him a calmness that can come from no other place than there. This place, is a sanctuary of rest that seems to belong to only him, it’s a blessing, a moment of clarity, it’s probably more real than anything else in this wonderful dream like state we are all living in.

so far…

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As you may know we have been blessed with autism. It comes to us as a great gift encompassed in our Boo. this is a few of the things we have learnt so far on our journey,

you can never have too many trains

it’s alright to eat your breakfast cereal and milk separately

repetition can be like a meditation

it’s not always necessary to use words to talk all the time, communication takes on many forms

it’s always better to ask for a kiss or cuddle first

we don’t mind getting caught up at railway crossings anymore, it’s kind of exciting

people sometimes assume that certain behaviours are naughty… but the people who matter, know better

sometimes it’s better to take a nap instead of going shopping

don’t ever be too busy to pause for a cuddle if one is spontaneously offered

to love, love and love with patients

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