Gods impersonating as children

Healing looking very suspicious these days, tracking along side escalating dollar amounts almost becoming a trillion dollar industry.. If healing is thriving in a time of sickness then we ought to be careful what we name sickness.

-Bayo Akolomafe

What does it mean to be well? Functioning? Normal? Contributing? Sane?

What does it mean to be these things from the view point of an ideology that is failing, has failed and who’s very fabric is falling away at the seams?

Should we even want to be well when wellness means falling back into systematic ways of being, partaking in stories that have not served kindly on the majority of humanity as a whole. Where do we find ourselves if we refuse to follow along, refuse to indoctrinate our children and force them to define themselves by notions that only serve the small minority, but instead waver on the outskirts, on the margins, belonging somewhere but no where from the grand narratives point of view.

How do we justify a life of happiness, enough food, warm shelter, access to clean water, the ability to take what we want to believe in and leave the rest behind for someone else’s contemplation because the harsh truth of it doesn’t feel good, because we know that what is on offer, is most certainly causing another to suffer? How do we justify our phones, our clothes, the very earth we hold ourselves to, when it is to the detriment of another be it human, non-human or life force. Can we still be alright with that, if that’s what it means to be well? Are we functioning well by fitting in, showing up, and wearing the construct of the story that has been passed down, placed upon us, even when we know that the fabric of the construct is dramatically failing and falling away, that it makes no sense anymore to the children that can’t sit still in a classroom, to the children that can’t ware shoes or don’t own any, can’t read or whom carry the companionship of voices in their heads. Are we well if we know these things and still we look the other way, we medicate, force and dominate, trying to make these things fit, that were most likely never meant to fit us this way in the first place.

Maybe we are not meant to be healing, fixing these things. Maybe the children that are being born into these untameable bodies that are bursting in their own wild forces are meant to be here. Maybe they are not really children with Autism at all but Gods of some other time. They are arriving in a cataclysmic motion, with an irresistible compulsion, causing trouble, denying the normative, upsetting the grand narrative. Could it be that we haven’t yet realised it is not for us to decide how they should be in the world, that it’s not really about us shaping things differently so that they can fit better, when fitting in is no longer what is necessary. Maybe they are here to take things apart, to cause mischief in the systems, to undo things, upset things, make trouble, disturb all manner of the seemingly normality of things. What if that story we are trying so very hard to manipulate their bodies into is finished now, that the reason they arrive in such grand force, what has been assumed could be an approaching Autism epidemic is because we are not listening, we are not really paying attention. Instead we are still trying to play out a narrative centred around an androcentric normality that no longer exists.

…maybe we should be ‘considering not what gets in the way of healing, but .. what healing gets in the way of. ‘ -Bayo Akomolafe

Maybe healing and fixing these things is, to not consider what we may not be able to see. Maybe we are yet to have the language for such places. What if we are being asked to consider and trust something so vastly different from anything we have ever known or seen before and what is really happening is that we are scared. We are afraid of arriving somewhere and not knowing the answers, or worse still that there will be no answer. We are afraid to enter into these unknowable places with our children because we feel that we are the ones guiding them, that we know what is best for them, it’s what the narrative has always been. But maybe we need to step down now, from our hierarchy and thinking that we know what is best, for it is overtly obvious now that this is not the case. Possibly it has never been. Maybe we need to place our faith in something else, be it the roots of the tree, the soil of the earth, the unassuming butterfly or the invisible ones who occupy the unseen spaces or could it be in these wild Gods that are impersonating themselves as Autistic children.

..a deeply limited observation, a tiny infraction of sorts

“Where running our of words to describe things.” Tyson Yunkaporta

He is not just thinking in spaces of here, nor in places that are concrete and known by the matter of what we assume to be fact and certain. A red chair is a red chair that sits before me. He’s not just thinking with his own mind in the solitude of self, individualised and seperate as it seems, in body and space. He is not thinking alone like this. He holds access to a magnitude of worlds, of universes, of things that perhaps cannot be known about or seen or touched by us from this point of time or from this point of reference. He, at times whilst in the thoughts of all that cannot be seen or touched, moves in a systematic dance with his hands. Visually sifting and sorting out the invisible threads of creation that contain the fabric of the unseen worlds. He has no real name for this, but his look assures me it must be done. He is not really all here but neither is he all there, where ever there is. He floats in the mystery of this space not really fitting anywhere. He comes not wholly in the light nor from the depths of darkness, but sits within the equanimity of both, which he says is a shade of purple and is where he needs to be, no matter how I try to lean him futher into the light of grace. There are things he says, are not for me to know. So I let them be between him and his God. It would seem that he is here to do things that are not really of this world at all. He seems to be working from some other unknowable space or perhaps place. He seems to be doing something here, that possibly matters, that is possibly necessary, yet it remains in the unseen, it is not tangible, cannot be recognised or commended and proudly acknowledged, there’s no certification for work like this. At this point, it would be more rational to disregard, to disorganise his innate, organic organisation, to attempt to undo his unusual invisible doings, to dismiss his hand dances as repetitive self stimulatory behaviours, or so it would seem. Yet, the small voice of my own knowing says that what he does, must be done. That this is not mine to contain, name or control. It is not even mine to understand. Do you suppose that maybe nothing needs to be imposed here?

contemplation

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Education is a complex and unnerving predicament again for me right now. I am familiar with this approaching uneasiness, having been here once before.  Even though it may seem we have come so far in the understanding of Autism,  admittedly i still have very little faith in what is on offer in the realm of mainstream schooling.  Autism moves to a rhythm of its own, and the immensity of perceptual change needed seems far too great, before children with Autism will really be able to flow as themselves, in a conformed learning environment beside those without.   Autism is viewed and distinctively labeled as a ‘dis’ ability, diagnosed formally as a  ‘dis’order, a not quite ‘normal’ version of what is considered neurologically to be of normal functioning. There is nothing within this notion that i could disagree with more.  I have read enough to understand what the science says, i have collaborated for long enough with what the psychology is saying. I have been working my way through the often tiresome array of information and opinions on whats best for Autism right up until now.  Now, i have decided to let it go. All of it. I have let go of the psychology behind the monotonous methods of behaviour therapy,  which admittedly in the beginning i sincerely embraced, and only now do i understand was under the belief that Autism is a ‘problem’  that could be resolved and aided through repetitious behavioural training.  Quite possibly it did help on a surface level, however the notion that Autism is a ‘problem’ needing to be fixed, never has truthfully sat well with me at all. In the beginning, there was a level of expectation as a parent to take action. A portrayal of  an ‘issue’ needing to be attended to with a sense of urgency, whilst the brain functioning is still in its vital stages of development. You were considered fortunate to know early, with an increased prospect for your childs outcome,  more opportunity for implementing ‘right’ behaviours, re-developing the brains patterns to more appropriate responses and  actions. And, at a time when i believed i held limited information on what was best for my child, this was appealing and made considerable sense to me. It was easier to trust, to go along with and be told what it is you needed to do by the cultivated experts in the field of Autism, than trust your own innate wisdom.   It was easier and less confronting to go along with the preconceived ideas and recommended ways to best ‘help’ my child, before truly allowing myself the time to go through the process of really understanding what Autism meant for us. I realise now it takes tremendous  surety to step away from the opinions and conforming psychology that is embedded in the methods aimed at aiding those with Autism and it is only now, that i am able to do so in confidence.

So, after letting it all go and trusting that we are the wisdom in the knowing what is best for our child, he is truly flowing to his own rhythm. Now, only is he is really learning, he is teaching me what he needs to know more than any book or therapy session could ever do. Simply by being in the space with him and allowing him to be, allows there to be no expectation, on who he is, how his behaviours are defined and interpreted. There is no wrongness, or less than ‘normal’ view in his world now.  In this space he is opening and has the room to grow at his own pace.  He is leading the way in his education, he is deciding what he would like to know more about, what discoveries need to be made or challenges that must be conquered on any given day.  He does not have to hide himself, withdraw, or become conscious of his quirks that bring him confused and often misguided attention. By deciding to no longer try to change his innate being, and the letting go of any practices that are supporting of assertions that the Autistic way is not of normal, or appropriate functioning has opened up a space for us. A place left untethered by any of societies preconceived ideas on how he or we need to be. Now when we pay attention, it is to him, and not everything about him. This way, requires you drop everything you think you know and begin to move in a way that feels right, better, it demands your true attention, a kind of listening requiring your whole self. He knows when the attention is else where or wonders or you become distracted mid conversation. Ironically he has this way of pulling You back in, refocusing You by gently moving your face back to his centre, watching your eyes intensely to ensure the listening stays, and that you are paying attention with your whole self. This contradicts most of what is said to be true about Autism.  Looking back i realise that everything that we tried, the methods we used, was all in efforts to ease his suffering, what we believed would help settle him in the consistent unsettledness and better sustain him long-term out in the larger world. It is only now that i can see we were moving him in a way that will never serve his true self. We were teaching him to mask who he is for sake of survival, the sake of others, to move in a way that is foreign to him, to refrain from voicing truth of what he was perceiving in fear of judgement. Something that is harshly bestowed upon us in life, Autism or not.

What i have realised is, this unique way of being offers new understandings of the way in which we interact and communicate with ourselves and each other.   Autism reaches into places of raw, unattached truth and moves to a rhythm that for most is just too confronting, raising the  questions of your own beliefs and perceptions on what life is meant to look like.  It demands you move with intention and integrity, have patients and compassion, and a willingness to stay present.  For most, this simply is just too much to ask all of the time. We spend our lives listening to and being told what we need to do in order to be considered accepted and successful in our lives, often spending many years following that guidance presumably under the belief that it’s the right way, the only way towards a successful, happy life. Is it?  i sincerely wonder, about that now.   When my daughter was asked by an admired teacher what she wanted to do when she completed her senior schooling,  she replied with, ‘create something’. Her answer was not surprisingly deemed unacceptable. Her intelligence and ability to know what is best for herself was highly disregarded.  Was the honesty and integrity of her answer appreciated and respected?  I’m afraid not.  Needless to say she no longer holds this teacher in high regards and no amount of university degrees he has his name on would alter that perception.  Indoctrination comes in many ways, from lifes many teachers almost from the very beginning of our lives. She has grown securely enough to think otherwise for herself thankfully, that the only perception that matters on her life and the direction it moves is that of her own, anything anyone else thinks is irrelevant. When i asked her the question, ‘knowing what we do now, would you have preferred a different way of learning, to be offered something other than undertaking mainstream schooling? She was adamant in her answer, ‘yes’.