contemplation

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Education is a complex and unnerving predicament again for me right now. I am familiar with this approaching uneasiness, having been here once before.  Even though it may seem we have come so far in the understanding of Autism,  admittedly i still have very little faith in what is on offer in the realm of mainstream schooling.  Autism moves to a rhythm of its own, and the immensity of perceptual change needed seems far too great, before children with Autism will really be able to flow as themselves, in a conformed learning environment beside those without.   Autism is viewed and distinctively labeled as a ‘dis’ ability, diagnosed formally as a  ‘dis’order, a not quite ‘normal’ version of what is considered neurologically to be of normal functioning. There is nothing within this notion that i could disagree with more.  I have read enough to understand what the science says, i have collaborated for long enough with what the psychology is saying. I have been working my way through the often tiresome array of information and opinions on whats best for Autism right up until now.  Now, i have decided to let it go. All of it. I have let go of the psychology behind the monotonous methods of behaviour therapy,  which admittedly in the beginning i sincerely embraced, and only now do i understand was under the belief that Autism is a ‘problem’  that could be resolved and aided through repetitious behavioural training.  Quite possibly it did help on a surface level, however the notion that Autism is a ‘problem’ needing to be fixed, never has truthfully sat well with me at all. In the beginning, there was a level of expectation as a parent to take action. A portrayal of  an ‘issue’ needing to be attended to with a sense of urgency, whilst the brain functioning is still in its vital stages of development. You were considered fortunate to know early, with an increased prospect for your childs outcome,  more opportunity for implementing ‘right’ behaviours, re-developing the brains patterns to more appropriate responses and  actions. And, at a time when i believed i held limited information on what was best for my child, this was appealing and made considerable sense to me. It was easier to trust, to go along with and be told what it is you needed to do by the cultivated experts in the field of Autism, than trust your own innate wisdom.   It was easier and less confronting to go along with the preconceived ideas and recommended ways to best ‘help’ my child, before truly allowing myself the time to go through the process of really understanding what Autism meant for us. I realise now it takes tremendous  surety to step away from the opinions and conforming psychology that is embedded in the methods aimed at aiding those with Autism and it is only now, that i am able to do so in confidence.

So, after letting it all go and trusting that we are the wisdom in the knowing what is best for our child, he is truly flowing to his own rhythm. Now, only is he is really learning, he is teaching me what he needs to know more than any book or therapy session could ever do. Simply by being in the space with him and allowing him to be, allows there to be no expectation, on who he is, how his behaviours are defined and interpreted. There is no wrongness, or less than ‘normal’ view in his world now.  In this space he is opening and has the room to grow at his own pace.  He is leading the way in his education, he is deciding what he would like to know more about, what discoveries need to be made or challenges that must be conquered on any given day.  He does not have to hide himself, withdraw, or become conscious of his quirks that bring him confused and often misguided attention. By deciding to no longer try to change his innate being, and the letting go of any practices that are supporting of assertions that the Autistic way is not of normal, or appropriate functioning has opened up a space for us. A place left untethered by any of societies preconceived ideas on how he or we need to be. Now when we pay attention, it is to him, and not everything about him. This way, requires you drop everything you think you know and begin to move in a way that feels right, better, it demands your true attention, a kind of listening requiring your whole self. He knows when the attention is else where or wonders or you become distracted mid conversation. Ironically he has this way of pulling You back in, refocusing You by gently moving your face back to his centre, watching your eyes intensely to ensure the listening stays, and that you are paying attention with your whole self. This contradicts most of what is said to be true about Autism.  Looking back i realise that everything that we tried, the methods we used, was all in efforts to ease his suffering, what we believed would help settle him in the consistent unsettledness and better sustain him long-term out in the larger world. It is only now that i can see we were moving him in a way that will never serve his true self. We were teaching him to mask who he is for sake of survival, the sake of others, to move in a way that is foreign to him, to refrain from voicing truth of what he was perceiving in fear of judgement. Something that is harshly bestowed upon us in life, Autism or not.

What i have realised is, this unique way of being offers new understandings of the way in which we interact and communicate with ourselves and each other.   Autism reaches into places of raw, unattached truth and moves to a rhythm that for most is just too confronting, raising the  questions of your own beliefs and perceptions on what life is meant to look like.  It demands you move with intention and integrity, have patients and compassion, and a willingness to stay present.  For most, this simply is just too much to ask all of the time. We spend our lives listening to and being told what we need to do in order to be considered accepted and successful in our lives, often spending many years following that guidance presumably under the belief that it’s the right way, the only way towards a successful, happy life. Is it?  i sincerely wonder, about that now.   When my daughter was asked by an admired teacher what she wanted to do when she completed her senior schooling,  she replied with, ‘create something’. Her answer was not surprisingly deemed unacceptable. Her intelligence and ability to know what is best for herself was highly disregarded.  Was the honesty and integrity of her answer appreciated and respected?  I’m afraid not.  Needless to say she no longer holds this teacher in high regards and no amount of university degrees he has his name on would alter that perception.  Indoctrination comes in many ways, from lifes many teachers almost from the very beginning of our lives. She has grown securely enough to think otherwise for herself thankfully, that the only perception that matters on her life and the direction it moves is that of her own, anything anyone else thinks is irrelevant. When i asked her the question, ‘knowing what we do now, would you have preferred a different way of learning, to be offered something other than undertaking mainstream schooling? She was adamant in her answer, ‘yes’.

 

 

 

 

a moment of grace

IMG_9777We gathered again on Christmas Eve as we always do with other families at my mums oldest, dearest, friends house. This year was different. This year, we were all here, with the children a year older and happy to reintroduce themselves to each other and the same faces we see only once a year and yet have become so familiar with. We were all here, in the absence of her. It has been less than a year, since she left us, we weren’t really certain if this wonderful tradition would continue, it has been going on for over thirty years. This celebration has always been about the children, the generations that it began with, now belongs to their children. It has been a sad year for this family, sad for my mum. On this night, we all paused, we took a breath from our own lives and it was there that the magic happened, there was a moment of grace for us all. We played, we laughed, we talked, we let go and smiled. There was a new baby to add to the generation, and the babies of last year were all toddlers now, and instant friends. Georgia, our littlest had a special attentiveness towards my mums friends husband. This was a recognisable hard moment for him, this had been his wife’s celebration, this was now, his gift to her. Georgia, in all of her young wise years, I’m certain knew this to be true. Her focus was on him. We watched in wonderment as she assertively bossed him around, ordering and leading him here and there, keeping him present, keeping him from falling down in his grief, that on a night like this would have been all too  easy to do. With bubbles, and smiles and angel wings on her tiny shoulders, we all remembered and vowed to come again next year.IMG_9720 IMG_9721 IMG_9712 IMG_9714 IMG_9717 IMG_9718 IMG_9713 IMG_9715 IMG_9711 IMG_9710 IMG_9709 IMG_9704 IMG_9706IMG_9784IMG_9782IMG_9781IMG_9783IMG_9786IMG_9785

so far…

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As you may know we have been blessed with autism. It comes to us as a great gift encompassed in our Boo. this is a few of the things we have learnt so far on our journey,

you can never have too many trains

it’s alright to eat your breakfast cereal and milk separately

repetition can be like a meditation

it’s not always necessary to use words to talk all the time, communication takes on many forms

it’s always better to ask for a kiss or cuddle first

we don’t mind getting caught up at railway crossings anymore, it’s kind of exciting

people sometimes assume that certain behaviours are naughty… but the people who matter, know better

sometimes it’s better to take a nap instead of going shopping

don’t ever be too busy to pause for a cuddle if one is spontaneously offered

to love, love and love with patients

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my girls

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this day in November

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This day in November, early morning wake up for mamma and papa,COFFEE and CUDDLES in bed from BOO, freshly laid eggs for perfect SCRAMBLED, a little art from SKYE,WASHING, garden PLAY time,swim in paddle pool for little ones and COUS COUS lunch.

COUS COUS SALAD

Ingredients: cous cous, sultanas, flaked almonds, grated carrot, pumpkin seeds, olive oil, sea salt,table spoon of salad dressing if desired.

Method: prepare cous cous as directed, grate one carrot, mix all ingredients together and serve cold.

building cubby houses

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this was my absolute favorite thing to do as a child, i remember draping sheets all over my childhood lounge room and spending hours upon hours entertaining all of my stuffed guests with tea and sweets. I often wonder if in this technological world we now find ourselves living in, if children are still being guided towards the simplicity of this sort of play.

play dough

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there is quite a gap between our two-year old and his older siblings. i must admit it’s taken a little adjusting to get myself back into toddler mode.  we are beginning to introduce some forms of structured play to our boo.  i had forgotten how much fun play dough actually is… my older children would never admit it  but they too enjoy a good round of play dough

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play dough recipe

ingredients

2cups plain flour,2tbls cream of tarte,2 tbls canola oil,3/4 cup table salt,food colouring,2 cups water,

method

combine all of the ingredients together in a saucepan and stir over a medium heat for approximately 5 minutes or until mixture comes together. be carful not to over cook as this will make the play dough dry. need on a lightly floured surface.